Living with a rare disease often means living with profound uncertainty.
On average, patients wait five to seven years from the onset of symptoms before receiving an accurate diagnosis. During that time, many see multiple specialists, receive misdiagnoses, and navigate a healthcare system that wasn’t built for conditions affecting relatively small patient populations. Even after diagnosis, new challenges arise: more than 90% of rare diseases still have no FDA-approved treatment or therapy, and financial and logistical obstacles can seem insurmountable. This can leave many patients and caregivers urgently needing solutions and support.
Organizations like the National Organization for Rare Disorders (NORD) have become an essential resource for these communities. DeepIntent’s partnership with NORD is a powerful example of how precision targeting and healthcare advertising infrastructure can work together.
Through Rare Disease Centers of Excellence across 28 states, NORD is helping connect patients with the specialized care they need while advancing research, education, advocacy, and public policy. Their patient assistance programs also work to reduce many of the barriers families face, helping improve access to care and resources that extend beyond medical treatment. With dynamic services that include help navigating financial challenges and other urgent social needs, these programs address the realities of living with a rare disease that extends far beyond medical care.
Helping Patients Find Relevant Resources
Helping patients find relevant, life-changing healthcare resources is just as important as building them. That’s where DeepIntent’s mission aligns with NORD’s work to build and maintain critical resources for rare disease patients.
Awareness campaigns play an important role in shortening the path to diagnosis and educating healthcare providers, ensuring patients and providers know support exists. For communities that are often difficult to reach because of their small patient population, reaching the right people at the right time can make a staggering difference.
That’s where technology built for healthcare becomes essential.
DeepIntent’s Commitment to the Rare Disease Community
Reaching patients living with rare diseases requires precision, healthcare-specific data, and the ability to activate campaigns responsibly across the healthcare ecosystem. DeepIntent’s partnership with NORD reflects our commitment to the rare disease community and highlights the value of privacy-safe, precision healthcare advertising in reaching highly specific patient populations.
With DeepIntent’s advanced healthcare advertising infrastructure, marketers can more effectively reach niche patient populations, including those affected by rare conditions.
No technology can solve the challenges of rare disease on its own. Helping patients find relevant, life-changing healthcare resources is just as important as building them. That’s where DeepIntent’s mission aligns with NORD’s work to build and maintain critical resources for rare disease patients.
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